Anthony Carbakhal, who was diagnosed with lateral amyotrophic sclerosis, recorded the emotional video in which he explained how this action helps him. Anthony is only 26. To the bass he has a genetic predisposition: his grandmother and mother became victims of this disease. "Bass is so damn scary. You do not imagine. No one wants to talk about it, because it's scary to see it, it's scary with it ... no one wants to look at a depressive man who dies and he has 2 to 5 years Life. No one wants to talk about it and spoil his day. "
Anthony turned to those who complain that the rollers of the participants of the action were flooded with a network: "I promise, soon you will return to your news tape with kittens and cars on the LET IT GO song. But now sick bass in the spotlight. For the first time in his whole life. I see that this topic went to the fore. Usually, when I told someone that my bass is sick, my mother is sick and grandmother ... There were two reaction options: either they did not know what it was, or knew how much it was Terribly, and turned off the conversation. Only 50 thousand people in the United States are sick bass. Not many heard about it. And not very beneficial for pharmacists to invest billions in the treatment of this disease. Because I will not bring the benefit, I do not stand me to save me?
My hands become weaker. I am harder to drive a car, dress ... In the end, I can not move my hands. I can not walk, talk and breathe independently. That is the truth about what bass is. Sorry for emotionality and tears. But if I just poured water on my head, you could not understand everything to the end. This is the first time this disease places such publicity. I am very grateful to all. You can not imagine that I feel, looking at every video! It raises my spirit, the spirit of each patient. You change the world, and we are very grateful. "